Palliative Adult Network Guidelines (Fourth Edition)

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Ferrell BR, Virani R, Grant M, Rhome A, Malloy P, Bednash G, Grimm M (February 2005). "Evaluation of the End-of-Life Nursing Education Consortium undergraduate faculty training program". Journal of Palliative Medicine. 8 (1): 107–114. doi: 10.1089/jpm.2005.8.107. PMID 15662179. Dixon KC, Ferris R, Kuhn I, Spathis A, Barclay S (February 2021). "Gypsy, Traveller and Roma experiences, views and needs in palliative and end of life care: a systematic literature review and narrative synthesis". BMJ Supportive & Palliative Care: bmjspcare–2020–002676. doi: 10.1136/bmjspcare-2020-002676. PMID 33619223. S2CID 231992307. National health systems are responsible for including palliative care in the continuum of care for people with chronic and life-threatening conditions, linking it to prevention, early detection and treatment programmes. This includes, as a minimum, the following components: Palliative care may also be able to support the people close to you, including friends, family and carers. They may be able to speak with professionals who can offer practical and emotional support. Is palliative care the same as end of life care?

Hospice and Palliative Medicine Specialty Description". American Medical Association. Archived from the original on 27 October 2020 . Retrieved 22 October 2020.

2. Dear Life by Dr Rachel Clarke

Palliative care for cardiovascular disease may help symptom relief, mental health support, and decision making for people with these diseases and their families. It may also include help with end-of-life planning, should that be needed. Palliative care for dementia a b c Silva RS, Caldeira S, Coelho AN, Apóstolo JL (November 2020). "Forgiveness facilitation in palliative care: a scoping review". JBI Evidence Synthesis. 18 (11): 2196–2230. doi: 10.11124/JBISRIR-D-19-00286. PMID 32813428. S2CID 221179683.

One instrument used in palliative care is the Edmonton Symptom Assessment Scale (ESAS), which consists of eight visual analog scales (VAS) ranging from 0–10, indicating the levels of pain, activity, nausea, depression, anxiety, drowsiness, appetite, sensation of well-being, and sometimes shortness of breath. [33] [34] A score of 0 indicates absence of the symptom, and a score of 10 indicates the worst possible severity. [33] The instrument can be completed by the patient, with or without assistance, or by nurses and relatives. [34] Interventions [ edit ]

a b Chochinov HM (2012). Dignity therapy: final words for final days. Oxford: Oxford University Press. ISBN 978-0-19-517621-6. OCLC 714030350. Goldstein NE, Cohen LM, Arnold RM, Goy E, Arons S, Ganzini L (March 2012). "Prevalence of formal accusations of murder and euthanasia against physicians". Journal of Palliative Medicine. 15 (3): 334–339. doi: 10.1089/jpm.2011.0234. PMC 3295854. PMID 22401355. Palliative care is required for a wide range of diseases. The majority of adults in need of palliative care have chronic diseases such as cardiovascular diseases (38.5%), cancer (34%), chronic respiratory diseases (10.3%), AIDS (5.7%) and diabetes (4.6%). Many other conditions may require palliative care, including kidney failure, chronic liver disease, multiple sclerosis, Parkinson’s disease, rheumatoid arthritis, neurological disease, dementia, congenital anomalies and drug-resistant tuberculosis. Similarly, a 2018 meta-analysis found that people with advanced cancer lived longer and enjoyed a better quality of life when they received outpatient palliative care.

Palliative care interventions in care homes may contribute to lower discomfort for residents with dementia and to improve family members' views of the quality of care. [37] However, higher quality research is needed to support the benefits of these interventions for older people dying in these facilities. [37] [38] Hardelid P, Dattani N, Gilbert R (August 2014). "Estimating the prevalence of chronic conditions in children who die in England, Scotland and Wales: a data linkage cohort study". BMJ Open. 4 (8): e005331. doi: 10.1136/bmjopen-2014-005331. PMC 4127921. PMID 25085264. ; Lay summary in: "Most children with life-limiting conditions still die in hospital, not home or hospice". 20 July 2021. doi: 10.3310/alert_46991. S2CID 242843746. A highly personalised approach to end of life care is needed to help Gypsy, Traveller and Roma communities". NIHR Evidence (Plain English summary). National Institute for Health and Care Research. 17 December 2021. doi: 10.3310/alert_48747. S2CID 245290694. pro-active quality care, and allows healthcare professionals to focus on better meeting patients’ needs. It has been developed in partnership with Marie Curieand the Clinical Innovation and Research Centre. Kar, SS; Subitha, L; Iswarya, S (2015). "Palliative care in India: Situation assessment and future scope". Indian Journal of Cancer. 52 (1): 99–101. doi: 10.4103/0019-509x.175578. ISSN 0019-509X. PMID 26837989.

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After you get a terminal diagnosis, you can have palliative care at any stage in your illness. You can also have palliative care alongside treatments, therapies and medicines aimed at controlling your illness, such as chemotherapy or radiotherapy.