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Palliative Adult Network Guidelines (Fourth Edition)

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The same care and attention to provide an informative friend for those supporting patients and families in the palliative context has been applied to the fourth edition as to the previous three and it is hoped it will prove to be as useful a friend to hard pressed professionals. Please note that this publication has two front covers clearly separating the Adult and Paediatric elements of the book.

Supporting your patient through loss(animation): overview guide for practices on tips to strengthen bereavement support. These include supporting bereaved people to ask for help from the These are just four of the book’s thirty-odd stories of normal humans, dying normal human deaths. They show how the dying embrace living not because they are unusual or brave, but because that’s what humans do. By turns touching, tragic, at times funny and always wise, they offer us illumination, models for action, and hope. Read this book and you’ll be better prepared for life as well as death. Paul Kalanithi died while working on this profoundly moving book, yet his words live on as a guide to us all. When Breath Becomes Air is a life-affirming reflection on facing our mortality and on the relationship between doctor and patient, from a gifted writer who became both. Featuring an increased emphasis on non-malignant diseases such as dementia, this authoritative text combines evidence-based care with the bedside experience of experienced palliative care professionals to give the reader a complete overview of the physical, emotional, and spiritual aspects of care for the end-of-life patient. Symptom management is covered in detail, with updated formulary tables and syringe driver protocols, and a new chapter on international perspectives to broaden the reader’s perception of methods for delivering end-of-life care. PHE Fingertipscomparative information presented for each Government Office Region, Strategic Clinical Network, clinical commissioning group and upper and lower tier

1. Being Mortal by Atul Gawande

Kathryn Mannix’s grandmother was born in 1900. Throughout her life, doctors got better at saving lives. Death moved from the home to something that happened in hospitals, hidden from public view. “In a single generation, people forgot what dying looked like,” said Kathryn, in a Marie Curie Palliative Care Research Department seminar last week. Now Dr Kathryn Mannix is devoting her career to reclaiming this ‘forgotten wisdom’. Helping someone plan and prepare for the best end of life experience possible is about so much more than DNACPR forms. It’s about having meaningful conversations over time and supporting them to think carefully about what matters most to them. More Care, Less Pathway Independent review recommending the phasing-out of the Liverpool Care Pathway

At the age of thirty-six, on the verge of completing a decade’s training as a neurosurgeon, Paul Kalanithi was diagnosed with inoperable lung cancer. One day he was a doctor treating the dying, the next he was a patient struggling to live. The following resources may be used to determine if a patient is nearing the end of life, and give recommendations of how treatment should be tailored to their specific requirements. Never before has aging been such an important topic. The systems that we have put in place to manage our mortality are manifestly failing; but, as Gawande reveals, it doesn’t have to be this way. The ultimate goal, after all, is not a good death, but a good life – all the way to the very end. last few days and hours of life and exemplify the high-level outcomes that must be delivered for every dying person. The way in which care varies is relative to the holistic needs of the individual, and the setting in which they are being cared for.All of us have a responsibility to make sure a person has the opportunity to record their wishes,” said Kathryn. We need to develop the ability to ‘sit with distress’ – to push against our instinct to change the subject during those tender and revealing conversations. “We need to think about that last discussion and ask ourselves ‘What would we wish we’d done tomorrow if this person were to die overnight?’” Supportive and Palliative Care Indicator Toolis a guide to identifying people with one or more advanced conditions, deteriorating health and at risk of dying for assessment and care planning Macmillan LearnZone a variety of free learning resources, online courses and professional development tools

Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter – to a father, to a profession, to life itself.The fourth edition has been updated by an authorship team of over 80 specialists in Palliative care from nine regions across the UK. PANG is a not for profit collaboration aimed at sharing key information to help support patients and families. The Kindle edition allows the Guidelines to be accessed and navigated on a wide range of handheld devices using the search and find tools that come with the free Kindle app. Since the first edition of PANG in 2002 more than 300,000 printed versions have been distributed across the UK and beyond. Basic symptom control in paediatric palliative careA key clinical tool for treating a wide range of symptoms experienced When Breath Becomes Air chronicles Kalanithi’s transformation from a medical student asking what makes a virtuous and meaningful life into a neurosurgeon working in the core of human identity – the brain – and finally into a patient and a new father.

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